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Many of you may have noticed we have been continuously improving our website. We are working on making it easier to navigate and provide more up-to-date information.  A major addition has been a way for everyone to subscribe to our periodical emails and newsletters.  We have already had to make some necessary changes in the way this is done so if you have if you have already signed up please subscribe again under the new program so we don’t miss getting you our updates! Sorry for the inconvenience and thank you for your continued support of RROH!

Holiday Giving

The holiday season is upon us again and you may be looking for the perfect gift.  Since this is the season of giving the best gift you can give is a donation to help others.

Every donation no matter the amount can make a big difference in the lives of the children and their families impacted by pediatric brain tumors.

You may make a donation in your name or as a gift donation in your friends or family member’s name.

Remember all donations made by December 31, 2012 will be a deduction on your 2012 tax returns.

RROH currently has opening for new members

Rachael’s Ribbons of Hope Foundation currently has opening for new members.  Our board is strictly volunteers with a passion to promote the research of pediatric brain tumors.  We have several different areas from an executive board position to committee member positions.  Serious inquirers need to be passionate about children and finding a cure for pediatric brain tumors along with being able to donate their time.  Please contact Lynette by email or call to discuss availability farther.

Masquerade Ball

Our 1st Masquerade Ball was wonderful! It was truly a magical night.  We have already started working on next year’s ball.  We will update the website when we have the date and have the online ticket sales available.  Pictures can be seen in the events page of the gallery.  We want to thank everyone that supported us and hope you will join us again for next year’s ball.

Brain Booster 5K

This is not just your everyday run, this is an event!  The 5K is a challenging course with hills, trails, and paved areas, all with the back drop of the Air Force Academy and Northern Colorado Springs views.  Family friendly event.  After the run we have vendors with samples, music, food,.  With your paid registration an entry into a drawing for prizes and you also get a goodie bag; in it you will find not only your t-shirt but coupons and free stuff too.  So even if you’re not the fastest runner you still have a shot at taking home a prize.  Pets allowed as long as they are friendly and on a leash.  This event is held the last Saturday of March.

Neurology Now Article

I read this article in Neurology Now magazine and thought it might be interesting to others.  Click on the link below to read the full article.

http://journals.lww.com/neurologynow/Fulltext/2012/08050/Navigating_Life_with_a_Brain_Tumor__Behind_the.20.aspx

Starting October 31, 2012, you can buy Navigating Life with a Brain Tumor from bookstores, Internet retailers, or directly from Oxford University Press at bit.ly/QUeo8S or the AAN Store at bit.ly/OXhwOu

Navigating Life with a Brain Tumor provides specific information on the various treatment options, whether through surgery, radiation, or medication.

Ultimately, Dr. Taylor explains, Navigating Life with a Brain Tumor was written to offer patients and their caregivers hope, adding that MRI scans and MRI spectroscopies as diagnostic tools continue to improve, and radiation therapies offer new and improved forms of brain tumor surgery.

Navigating Life with a Brain Tumor: A Sneak Peek

Chapter 1

“A Look Inside Your Brain” provides a wealth of specific information on the brain’s structure, including its hemispheres, lobes, and 12 pairs of cranial nerves, to provide patients with the background they need to better understand their condition.

Chapter 2

“Diagnosis” details the specifics of getting a brain tumor diagnosis, whether via MRI, CT scan, angiogram, or biopsy, and explains exactly what patients will undergo during those procedures. For example, CT scans “typically last 10 minutes while you lie on a moveable table that glides smoothly into the center of a doughnut-shaped machine,” while for MRIs, the patient should “expect to lie within the MRI cylinder for about 20 minutes to an hour.” The chapter also addresses the importance of patients being their own best advocates by assembling the team they want, keeping copies of their file, and getting second opinions when desired.

Chapter 3

“Understanding Radiation Therapy” focuses on specific issues patients might face in undergoing radiation therapy, whether relating to where they should get it done (location is important because of the daily drive it will entail), a smell they may experience during the treatment, or other side effects of it.

Chapter 4

“Lifestyle Management” focuses on alternative treatments and therapies that may benefit the brain tumor patient. These include breathing, exercise, nutrition, and sleep advice, as well as specific herbal and dietary supplements that may improve a patient’s life and health. For example, the authors discuss the evidence for or against turmeric, a root in the ginger family, and resveratrol, a pigment found in the skins of red grapes. Chapter 4 also provides information on specific legislation or programs that might help people with brain tumors, including the Federal Family and Medical Leave Act and the American Cancer Society’s program to help defray hotel costs for those who travel daily for radiation treatments.

Chapter 5

“Symptom Management and Palliative Care” addresses specific symptoms brain tumor patients may face, the importance of sexuality and spirituality in coping with cancer, and hospice care for those patients who need it.

Chapter 6

“Care of the Caregiver” focuses on taking care of those people who help take care of brain tumor patients.

Chapter 7

“Planning for Your Future” focuses on nonmedical issues brain tumor patients need to deal with, including financial issues, legal issues, health care directives, and the importance of compiling an emergency notebook. Written entirely by two lawyers, this chapter relates to more than just brain tumor patients and may be included in all future Neurology Now Books.

Chapter 8

“Benign Tumors” provides specific information on these less threatening tumors, including meningiomas and pituitary adenomas.

Chapter 9

“Primary Tumors” focuses on these dangerous tumors that begin in the brain. It addresses the three most important things in battling primary tumors—a patient’s age, the specific type of tumor, and how it responds to treatment—as well as specific treatment options that currently exist and may exist in the future.

Chapter 10

“Metastatic Brain Tumors” gives information on the diagnosis, treatment, and prognosis for patients developing secondary brain tumors.

Appendix

The Appendix includes a guide to drugs prescribed for brain tumors, and the glossary offers definitions of key terms.

©2012 American Academy of Neurology

 

We are in no way associated with Neurology Now or receive anything from Neurology Now.  This is an article I found helpful and wanted to share with others.